Cancer Update !! revised !!: Spent the Day in Hell yesterday; Huge step Backward; Restarting

By 3 days ago my pain was under control, indicating I
should come off of my IV, into liquids, then solids, to beginn
the major and crucial task - to restart my bowels.  All my vitals
were great.I had NOT passed gas,very a bad sign.

We went to liquids, quickly and then to solids,  tho I was very conservative,
not wanting to move too fast.  Well, by Sunday night things were
going badly.  Pain meds too had been switched from liquid iv to solid.

Pain was headed toward 7-8 in my back and 7-8 in my stomach. 

Monday they sent me in the am to a tummy x-ray, and afternoon did a chest
x-ray in my room. 

by 6pm yesterday, Monday, I had thrown up 3 times.  Pretty hellish. My
pain back and front was an 8-9 most of the day.  Often I had spasms like
attempts to burp but they only seemed to pack in more air.  My stomach
was explodig

So, about 6pm we took the huge, but necessary step back of putting
the nose tube back in - no sedation - yes, not fun. "OH, MR MCGINLY,
I'VE NEVER SEEN ANYONE TAKE IT SO WELL," said the nice and
competent nurse, every time, I suspect, to a patient that didn't pass out, or
go to the psych ward over this.

Within 2 hours 2 buckets had been suctioned out of my stomach - all
bile kinds of stuff.

I don't think they know what the hell is going on.  NO, I don't fault them.
They just can't tell yet.  These are major, tricky operations, and restrting
the bowel is still black magic.

I could manage zero communication except with the med team.
The one incoming phone call, the phone had fallen on the floor and
I was in no position to retrieve it.  ZERO ability to read or resend
emails - never had the computer in my hands -world record

My ability to type is 60% impaired - error rate that high, speed rate
diminished that much.

 Even in this way above average hospital - oh how I feel for patients that
can't advocate for themselves.   Huge, skilled, self advocacy is needed  on
every level - understaffing, undervaluing of total patient care, undervaluing
of crucial need for inter and intra dept communication.  Nightmare, for the
better staff memebers at all levels, I'd guess. One, otherwise nice floating
doctor that was sent to check on me late yesterday, day Hell, 'Now, why
do you want to check in [with your highly competent nurse. trained in all
this] for the information you are asking me]??????' WTF???????

Much I'd like to write, report, but my typing is so smashed, and my memory
so smashed, I don't know what will be possible when.